Author's posts
Reflecting on the challenges of patient advocacy
The third week of September is Mitochondrial Disease Awareness Week: a time to fundraise, light up buildings in green, and hold events that highlight mitochondrial disease research and awareness. My family has never heard of mitochondrial disease until…
Getting a terminal diagnosis for my baby
I knew things weren’t right when a nurse called me on my cell phone just a few minutes after she sent me to pump milk in a private room and said that the medical team wants to meet with my husband and me immediately in a conference room. My suspi…
To anyone in medicine: This is why listening matters
Victor Frankl is an Austrian neurologist, psychiatrist, and Holocaust survivor, who survived three years in the concentration camps of Dachau and Auschwitz. He once told a story about a woman, his patient, who called him in the middle of the night sayi…
When doctors are right
As I was scrolling through my Facebook feed one morning, I noticed an article with a title starting with: “When Doctors are Wrong” with a picture of a newborn baby with a breathing tube in the NICU. I immediately opened the article and star…
