Category: Patients

My healer, please guide me on this journey

I walk this dark and winding path between wellness and illness, moving between darkness and light on this journey of life. As I move between well-being and an uneasy state of uncertainty, a roller-coaster of emotions moves over me. I am brought to my k…

What it takes to be called a great doctor: a patient’s perspective

Let me begin by extending my gratitude to all physicians who have served our country during this time of the coronavirus pandemic. During this trying time, your dedication and service have given a sense of stability and confidence in our health care sy…

How to be sick: challenges faced by those with chronic pain and illness [PODCAST]

“I write in my book, ‘I know from experience that nothing positive comes from directing blame at yourself.’ When it comes to chronic illness (which includes chronic pain), it’s crucial to remember that you are not the enemy. Anyone ca…

Health misinformation from a patient perspective [PODCAST]

“What on earth are we doing here, folks? To try to save a tanking economy, workers were sent back to their jobs much too early, causing again a spike in cases of the virus. I realize that the loss of a paycheck is a major traumatic situation for …

A terminal diagnosis for my baby [PODCAST]

“Eventually, this thankfully passed. Now, almost three years later, I know that this loss will always be with us. Miriam was beautiful, she was our only girl, she was perfect for our family, and she’s always missing. Still, my memories of being i…

Patient advocacy is more important now than ever [PODCAST]

“In the best of times (and these are certainly not), all patients need advocates all the time; now more than ever, vulnerable patients need them more but don’t have access to them. Vulnerable populations have more at stake when visitors are limit…

10 challenges faced by those with chronic pain and illness

I’m writing this piece partly to celebrate the release of my new book, How to Be Sick: Your Pocket Companion, and partly, as always, to try and help readers. I thought I would share the challenges that the book covers, adding some comments as I go. Man…

Patients without traditional support systems, and the doctors who stereotype them [PODCAST]

“When doctors ignore the evidence showing that a support system doesn’t have to be traditional in order to be effective, that’s not a medical judgment. It’s a personal prejudice that puts singles at serious risk. Classifying patients as married o…

Reflecting on the challenges of patient advocacy

The third week of September is Mitochondrial Disease Awareness Week: a time to fundraise, light up buildings in green, and hold events that highlight mitochondrial disease research and awareness. My family has never heard of mitochondrial disease until…

Making time for patient advocacy is more important now than ever

“Time is generally the best doctor,” according to the Roman poet Ovid. But these days, in the middle of the pandemic, what doctor has time? Health care professionals already have 29-hour days. In many places, hospitals are at or near capacity because o…