“You sure know a lot about your condition.” Many patients with long-term illnesses have heard this. When it comes from a medical professional, it’s never a compliment. It’s a statement that is usually, at best, laced with disapp…
“Do you have Ehlers-Danlos syndrome?” It wasn’t a question I expected during an ophthalmology appointment. It was, however, one I’d been asked before. Two other specialists had suggested I might have connective tissue issues, but noth…
They’re very easy to spot. Sometimes it’s the crisp, brand-new lab coat or the shadows under their eyes. Often it’s announced in large letters on their ID badge. Or the badge is hidden, which is also a tell. If they’re trying to…
There’s a particular bit of conversation I hope never to hear when my doctors are discussing surgery or testing. Not the details of the procedure. Not the possible outcome. Not the pain (and let’s be real, we all know “some discomfort…