Category: Patient

A patient’s COVID-19 reflections

In this age of the coronavirus pandemic, every moment of life takes on new meaning and importance. Decisions must be made based upon facts known, not assumed. Everything requires careful thought and planning, like a trip to the pharmacy for refills of …

A patient’s plea: I don’t know who to put my trust in

Do you wake up these days thinking that you’ve been whisked off your feet by some strange force and dropped in some unidentifiable place, similar to what happened to Dorothy and Toto in the Wizard of Oz?  For the two of them, there was a happy en…

10 challenges faced by those with chronic pain and illness

I’m writing this piece partly to celebrate the release of my new book, How to Be Sick: Your Pocket Companion, and partly, as always, to try and help readers. I thought I would share the challenges that the book covers, adding some comments as I go. Man…

Reflecting on the challenges of patient advocacy

The third week of September is Mitochondrial Disease Awareness Week: a time to fundraise, light up buildings in green, and hold events that highlight mitochondrial disease research and awareness. My family has never heard of mitochondrial disease until…

An patient’s ode to healers

Pages of my life turn over As the breezes of time flow over me. Remembrances of your presence As the world welcomed my first born so many years ago. Your calming voice and words of wisdom reminded me that life Would be different, but oh so much better….

Please listen to those in the trenches

Where have the months of summer gone? The hazy, lazy days of summer to be spent out on the lake, picnicking with friends and family, state fairs, all the fun things we long to take part in. Occasions that should call for one to be present at with antic…

A priest, a police officer, and tragedy

He shoved the paper with the address in his pocket. Then he found his little black bag with the oils and other implements for giving what once was called the last rites of the church, but were now termed the sacrament of the sick, and headed off in the…

What it’s like to write about COVID-19 while it’s killing your mom

My mom was beyond vulnerable to the virus. May of 2020 marked two years since she’d become a nursing home resident—receiving care for several chronic illnesses. She died of failure to thrive due to Coronavirus 2019 on June 1, 2020, at the age of …

Making time for patient advocacy is more important now than ever

“Time is generally the best doctor,” according to the Roman poet Ovid. But these days, in the middle of the pandemic, what doctor has time? Health care professionals already have 29-hour days. In many places, hospitals are at or near capacity because o…

There are drawbacks when multiple layers are placed between patient and physician

Modern medical practices are assisted by advances in technology but remain challenged by the costs of doing business.  Physicians and surgeons are meeting the need to deliver care to large caseloads by employing nurse practitioners and physician assist…