Category: Conditions

A man’s life turned upside down by pneumonia and Stevens-Johnson Syndrome

An excerpt from Particles in the Air. As he sat in the empty waiting room several hours later, Forest couldn’t recall how he made it through the remainder of the morning. He had never felt so terrible in his life, even as a child. His chest and r…

Jimmy Carter’s end-of-life decision: Respecting patient autonomy and the importance of hospice care

A KevinMD article about Jimmy Carter’s end-of-life care decision, “The heartbreaking story of Jimmy Carter: a call for Medicare reform in end-of-life care,” indicated that the former president’s decision was heartbreaking. Howev…

Rubinstein-Taybi syndrome: Understanding a rare disorder and supporting patients and families

Rubinstein-Taybi syndrome (RTS) is a rare congenital disorder characterized by a broad spectrum of clinical features, including intellectual disability, growth retardation, and distinct craniofacial and limb abnormalities. Named after Dr. Jack Rubinste…

Transforming birth: How advocacy and sharing stories can shape policy and empower families

Musical genius and mogul Rihanna recently graced the Oscars stage for her second performance after the birth of her son, with a baby bump indicating her second pregnancy. She described her first birth as “blessed” and “beautiful.&#822…

Finding hope in the face of cancer

“My best friend’s mother arrived at our oncology outpatient department. She had recently been diagnosed with locally advanced breast cancer and was understandably apprehensive, filled with numerous questions. I took her medical history and …

How do we reduce hypertension in Black Americans?

Nearly half of all Americans have high blood pressure, but hypertension disproportionately affects Black Americans, with 56 percent of this population affected. The disparity is especially stark for stage II hypertension, which affects 42.1 percent of …

Proud dental school patient shows off a rare gold foil filling

I treat at the dental school in my community, Louisville, Kentucky. I have been a patient there for more than 30 years, so I have had many soon-to-be licensed dentists and dental hygienists look at my teeth. I have never had a bad experience or a clunk…

Why an apology matters in medicine

March was Endometriosis Awareness Month, and my journey with the disease involved a medical error. The apology I received restored trust in my care, a pivotal moment I hope can occur between more patients and physicians. Medical error disclosure to pat…

The heartbreaking story of Jimmy Carter: a call for Medicare reform in end-of-life care

The purpose of the serious illness conversation is to offer patients a clear choice between treating and not treating an incurable disease like liver cancer. The goal is to give the person permission to alleviate pain and suffering. The individual migh…

From hope to heartbreak: a story of loss in the ICU

Ms. Laura was a vibrant and feisty lady with a personality that filled the room. She had been my patient two months ago when she was admitted for an irregular heartbeat and COPD exacerbation. She was a smoker, and despite her heart issues, she had a st…