Category: Patient

Healing and heart when recovering from cancer

As people, we often have multiple stories to tell, from different perspectives. Multiple stories and perspectives can be wed or braided together around the same themes. Here we braid together two separate perspectives of a patient author and a physicia…

Including the patient perspective on tumor boards

I am a firm believer that medicine is best practiced as a team, with the one undergoing treatment at the center participating fully. It’s a belief embedded in the multidisciplinary care model. I have been fortunate to have been exposed to multidiscipli…

To anyone in medicine: This is why listening matters

Victor Frankl is an Austrian neurologist, psychiatrist, and Holocaust survivor, who survived three years in the concentration camps of Dachau and Auschwitz. He once told a story about a woman, his patient, who called him in the middle of the night sayi…

Doctors, do you really understand?

There is a haze lurking overhead clouding rational thinking. Thoughts wander back to times when my body was unencumbered, and I felt nothing was out of my grasp.  Maybe that was an unrealistic thought, but it is how youth and inexperience protect one f…

When hospitals are like prisons

Some weeks ago, this writer visited with a friend who had been admitted to an inpatient psychiatric unit of a New York hospital. The friend had been there for a few weeks. Other patients have been there for longer. After spending approximately an hour …

Tips for nurses from a patient who was one

I was an RN for more than 40 years and am now retired. As a recent hospital patient, I documented my experiences. This resulted in a letter to nurses everywhere. *** Dear Nurse, Please be kind to me. I am frightened, alone, and in pain. I am way out of…

This patient got an estimate before surgery. The bill was so much more.

From a planning perspective, Wolfgang Balzer is the perfect health care consumer. Balzer, an engineer, knew for several years he had a hernia that would need to be repaired, but it wasn’t an emergency, so he waited until the time was right. The opportu…

5 things I wish I had known earlier about chronic pain

I’ve been living with chronic pain for more than a decade. It began in 2009 with nerve damage after emergency groin surgery. Four years later, I fell and hit my head. That fall led to a constant headache, a whistling sound in my ear, back and hip pain,…

Here’s why your patients disregard prescriptions

Take one-half tablet three times per day with meals, increasing by half each week until reaching a maximum of three tablets three times per day. Did you get a new prescription from your doctor? If so, there is a 50 percent chance you will not adhere to…

As a patient, I never understood the heartbreakingly human toll our system takes on clinicians

Let’s get right to it: This is an apology letter to frontline clinicians. And a call to action. I’m a patient advocate, and I’ve spent most of the last 20 years fighting for patient- and family-centered care in national laws and regulations, and in loc…