Death is an inevitable part of the journey of life. We all have experienced its effects: the death of a family member, the death of a friend or those special individuals who we might have barely known but who left an indelible mark upon our consciousne…
The mud is deep and thick and black. The smoothness of its surface is deceiving, drawing me closer to it with promises of contentment. It lures those who dare to tread upon it into its hidden depths. Hopes are dashed as one struggles for freedom. It is…
I’ve been concerned lately. Here’s why. In 2001, I got sick with what the doctors assumed was an acute viral infection, but I never recovered. I’m mostly housebound, often bedbound. My diagnosis is the little understood (but much misunderstood) myalgic…
“The dermatology profession exists for the primary purpose of caring for the patient. The physician-patient relationship is the central focus of all ethical concerns.” – American Academy of Dermatology, Code of Medical Ethics. The doctor-patient …
Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to engage with you as a person truly? Your health — and even your life — could depend upon it. A perceived absence of empathy can signif…
My son, Luke, was born 18 months ago with myelomeningocele, the most severe form of spina bifida. Luke and our family have faced many challenges: premature birth at 26 weeks due to complications after in utero surgery for spina bifida; a 171-day stay i…
When my father reached his mid-80s, an accelerating accumulation of physical and mental functioning issues persuaded him to switch to a primary care physician in a concierge medical practice. Although the doctor’s pedigree proclaimed his competence, he…
When I was a preemie — all two-and-a-half pounds of me — my mom was understandably worried. She said her doctor wheeled her down the hall to the newborn nursery, and my mom could hear me screaming all the way down the hall. She said, “I’ve got to hand …
An excerpt from How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers (Second Edition). Copyright 2018 by Toni Bernhard. Excerpted with permission from Wisdom Publications. In the years since I’ve been chronically ill, more essential to me than formal meditation has been mindfulness outside of meditation. Mindfulness refers to paying attention […]
An excerpt from How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers (Second Edition). Copyright 2018 by Toni Bernhard. Excerpted with permission from Wisdom Publications. The fifth way I cultivate compassion for myself is to consciously work on opening my heart to the intense emotions — and emotional swings — that […]
