Families affected by ultra-rare diseases are starting their own companies to speed the development of treatments for their kids, venturing into territory that traditional drugmakers deem too risky.
Category: children’s health
‘So Rudderless’: A Couple’s Quest for Autism Treatment for Their Son Hits Repeated Obstacles
Amparo and Victor Rios began searching for answers about their son’s development when he didn’t hit some milestones after turning 2. Three years later, they are still trying to get their insurance to pay for expensive therapy to help him.
Nurse Midwives Step Up to Provide Prenatal Care After Two Rural Hospitals Shutter Birthing Centers
Dozens of Iowa hospitals have closed their birthing units. A team of University of Iowa nurse midwives can’t reopen them, but they’ve found a way to provide prenatal checkups and other crucial services in two towns.
Kids Want to Put Montana on Trial for Unhealthy Climate Policies
Sixteen children and young adults are suing the state over energy policies they say are hurting their health and environment. The flooding that closed Yellowstone National Park may show they have a point.
The Search for Scarce Formula Is Worse for Rural Families on WIC
Constraints imposed by the Special Supplemental Nutrition Assistance Program for Women, Infants, and Children, known as WIC, that prevent recipients from using benefits to buy formula across state lines weigh on families as the nationwide formula shortage drags on.
KHN’s ‘What the Health?’: Closing In on Covid Vaccines for ‘The Littles’
The wait is nearly over for parents of kids under 5 as a key advisory committee to the FDA recommends authorizing a covid-19 vaccine for the youngest children. Meanwhile, Congress is struggling to fill in the details of its gun control compromise, and, as the Supreme Court prepares to throw the question of abortion legality back to the states, the number of abortions has been rising. Shefali Luthra of The 19th, Sarah Karlin-Smith of the Pink Sheet, and Sandhya Raman of CQ Roll Call join KHN’s Julie Rovner to discuss these issues and more. Plus, for extra credit, the panelists recommend their favorite health policy stories of the week they think you should read, too.
Double Shifts, Credit Card Debt, and Family Loans When Twins Were Born Early
One Chicago woman gave birth to twins 10 weeks prematurely, and the children needed extensive care. The medical bills topped out at around $80,000. Desperate, the parents loaded up credit cards, borrowed from relatives, and delayed repaying student loans.
It’s Hot Outside — And That’s Bad News for Children’s Health
An article in the New England Journal of Medicine takes a sweeping look at how heat — which can be a byproduct of air pollution and climate change — adversely affects people’s health, especially that of kids.
Covid Funding Pries Open a Door to Improving Air Quality in Schools
Researchers say the billions in pandemic funding available for ventilation upgrades in U.S. schools provides a once-in-a-generation opportunity to combat covid-19, as well as making air more breathable for students living with allergies, asthma, and chronic wildfire smoke.
States Fight Student Mental Health Crisis With Days Off
In early 2022, Illinois joined a growing number of states where lawmakers and school leaders are trying to combat the ongoing student mental health crisis by granting days off for mental health needs.
