Families affected by ultra-rare diseases are starting their own companies to speed the development of treatments for their kids, venturing into territory that traditional drugmakers deem too risky.
Category: Health Care Costs
‘So Rudderless’: A Couple’s Quest for Autism Treatment for Their Son Hits Repeated Obstacles
Amparo and Victor Rios began searching for answers about their son’s development when he didn’t hit some milestones after turning 2. Three years later, they are still trying to get their insurance to pay for expensive therapy to help him.
Listen: Why Medical Debt Touches Every Corner of America
KHN senior correspondent Noam N. Levey joined WBEZ and Wisconsin Public Radio to talk about medical debt and health care costs in the U.S.
‘An Arm and a Leg’: One ER Doctor Grapples With the Inequities of American Health Care
This episode is an interview with Dr. Thomas Fisher, author of “The Emergency: A Year of Healing and Heartbreak in a Chicago ER.”
In America, Cancer Patients Endure Debt on Top of Disease
Medical breakthroughs mean cancer is less likely to kill, but survival can come at an extraordinary cost as patients drain savings, declare bankruptcy, or lose their homes, a KHN-NPR investigation finds.
Seeking to Kick-Start Biden’s Agenda, Schumer Unveils a Bill for Medicare Drug Price Negotiations
In addition to allowing federal officials to negotiate the price that Medicare pays for some drugs, the bill would cap annual out-of-pocket drug costs for Medicare beneficiaries at $2,000. But before Democrats can pass the bill under special rules that prevent Republicans from staging a filibuster, they must get approval from the Senate parliamentarian.
‘Free’ Screening? Know Your Rights to Get No-Cost Care
Even a decade in, the Affordable Care Act’s recommendations to simply cover preventive screening and care without cost sharing remain confusing and complex.
How to Get Rid of Medical Debt — Or Avoid It in the First Place
Medical bills can add stress to the already stressful experience of dealing with a medical crisis. And if you can’t pay those bills, they can linger, wreaking havoc on your financial goals and credit. Here’s how to protect yourself.
How Much Health Insurers Pay for Almost Everything Is About to Go Public
New government rules force health insurers to publicly disclose what they pay for just about every service. That information could help consumers and employers know whether they’re getting a fair deal.
Government Watchdogs Attack Medicare Advantage for Denying Care and Overcharging
The Government Accountability Office and the Health and Human Services inspector general’s office say seniors enrolled in the program are suffering and taxpayers are getting bilked for billions of dollars a year.
